Childhood disintegrative disorder (CDD) is an extremely rare condition that causes a severe loss of previously learned social, physical, behavioral, and communication skills. The condition is also referred to as Heller’s syndrome, named after Theodore Heller, who first identified the condition in 1908. Heller originally referred to the condition as disintegrative psychosis.
Children with CDD seem to follow a pattern where initial years of normal growth and development, up to the age of 2, are followed by a severe regression in skills. CDD is categorized as an autism spectrum disorder because it shares a similar profile of debilitating developmental effects in children.
The precise cause of CDD is unknown, but research findings suggest that it may arise in the neurobiology of the brain, corroborated by evidence that these children have an abnormal electroencephalogram (EEG), which measures the brain’s electrical activity.
CDD is also sometimes associated with seizures, which is another possible symptom caused due to the neurobiology of the brain.
CDD is characterized by its late onset and causing developmental delays in
Children with CDD seem to progress as per standard developmental milestones until the age of 2 when CDD usually manifests. At this point, their cognitive functions decline significantly. Some children may have symptoms of CDD becoming apparent between 2 and 10 years old.
The speed with which this disintegration occurs can vary. In many cases, the regression occurs slowly enough for the child to realize something is happening and prompts them to ask their parents about it. It can be devastating for the child and the family to have an otherwise healthy and growing child experience such severe regression. In most cases, loss of skills takes place over a six-to-nine-month period.
Parents usually take their child to a physician for a check when they notice regression in skills after at least 2 years of normal development. Areas of regression can include
CDD is diagnosed when there is a loss of previously learned skills in at least two of these areas.
Treatment for CDD is similar to other autism spectrum conditions. The focus is on managing the symptoms and early educational interventions. Therapy is recommended according to the needs of the child and can include the following:
Therapy is usually supportive in nature and includes specific behavioral interventions designed to halt behavioral deterioration and improve communication, self-help, and social skills. The focus is on stabilizing the child’s functional level as well as educating and supporting the parents.
At Sunshine Advantage, we provide dedicated support for children diagnosed with Childhood Disintegrative Disorder (CDD). Our team of therapists and board-certified behavioral analysts design individualized therapy and treatment plans that focus on your child’s unique symptoms and goals.
In collaboration with other providers, we offer Physical Therapy (PT), Occupational Therapy (OT), and Speech Therapy for a comprehensive, multidisciplinary approach to care, ensuring all aspects of your child’s development are addressed.
At Sunshine Advantage, we can provide support for children diagnosed with CDD. To explore how we can help your child and family, call Sunshine Advantage at 855-523-2327 or contact us online.
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